Self help while waiting for an appointment for MCAS

Tips & useful resources

• If you are unable to find an appointment with us please use this newly created list of MCAS practitioners who may be able to help sooner. The directory is organised by city. The Menopause Consultancy highly recommends Dr Arnold Deering and Dr Abbi Lulsegged.

• You could try taking a look at the RCGP website (Royal College of General Practitioners). On the website is a toolkit for EDS - in the section called "Emerging Major Associations" you will find a section on MCAS. It may be worth printing off the toolkit for EDS and taking a copy to your GP on your next visit. As it is on the RCGP website they should take notice of it and accept the information.

• There is also a social media support group called Mast Cell Action. Mast Cell Action can be contacted through this email address info@mastcellaction.org 

• We would highly recommend following a low histamine diet.

• The following links may also provide useful information:
  https://pubmed.ncbi.nlm.nih.gov/32324159/

  https://pubmed.ncbi.nlm.nih.gov/28262205/

  https://pubmed.ncbi.nlm.nih.gov/27132234/

  https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10001285/?utm_source=substack&utm_medium=email