Self help while waiting for an appointment for
MCAS
Tips & useful resources
Please visit The RCGP website (Royal College of General Practitioners), which has a GP toolkit for Ehlers-Danloss syndromes (EDS). In the section called "Emerging Major Associations" you will find a section on MCAS.
It may be worth printing off the relevant sections of the GP toolkit for EDS and taking a copy to your GP on your next visit. Since it is on the RCGP website, they are more likely to take notice of it and accept the information.
This article How Do These Mast Cells Get So Dysregulated? contains a great explanation of MCAS.
There is a social media support group called Mast Cell Action. Mast Cell Action can be contacted through this email address info@mastcellaction.org
We highly recommend following a low histamine diet.
If you have an MCAS diagnosis and you need a treatment involving Anaesthesia, you should be treated in the same way as someone who has Mastocytosis. This does not mean that you have Mastocytosis, just that you should be treated in the same way. Here is a link to information that you should give to your Anaesthetist. Anaesthesia Advice.
The following links to medical articles may also provide you with some useful information:
Diagnosis of mast cell activation syndrome: a global "consensus-2"Characterization of Mast Cell Activation Syndrome
Pharmacological treatment options for mast cell activation disease